Patient Education & Consumer Health Information

Brochures and Handouts

• CareNotes and DrugNotes are available in two forms:
  
  • Standard CareNotes has no custom features, but is accessible from any computer that has access to the Internet. Off-campus use requires a Jefferson Campus Key.
    Note: This version does not contain customized local TJUH notes
  • MD Consult patient education materials are available in both English and Spanish, for diseases, conditions, medications, and alternative therapies. Special instructions may be included in a printout made for the patient.

Clinical Trials

• Cancer Clinical Trials at Jefferson's Kimmel Cancer Center.
  
• ClinicalTrials.gov provides over 4,000 current clinical trials sponsored by the National Institutes of Health (NIH) in searchable form. Jefferson trials sponsored by NIH are included. Information includes trial name and ID, sponsors, purpose, current status, who may be eligible, where trials are being held, whom to contact, and references to published papers that describe findings.

Web-Based Resources

• MEDLINEplus Health Information is a free service of the National Library of Medicine for healthcare consumers, including health topics, directories of healthcare providers, interactive health tutorials, drug information from the U.S. Pharmacopeia, and a medical dictionary. Links to MEDLINE generate automatic searches of the professional literature for specific health topics. The ADAM medical encyclopedia is also available.
  
• Health Finder (DHHS)
  The Department of Health and Human Services' gateway to consumer health information resources produced by the federal government and its partners.
  
• Merck Manual of Medical Information - Home Edition
  A lay version of the authoritative Merck Manual is available in full text. Text of the professional edition (Merck Manual of Diagnosis and Therapy, 17th Edition) is also available.
  
• NIH Consumer Health Information
  Includes free full-text patient education and consumer-oriented materials produced by the member institutes of the NIH.
  
• Outreach and Special Populations (NLM)
  Compiled by the National Library of Medicine, these include material in multiple languages about smoking as well as other health issues:
  • Asian American Health
  • Arctic Health
  • American Indian Health
    
• EthnoMed (formerly the Twenty-Four Languages Project) (Univ. of Utah)
  Electronic access to consumer health brochures in multiple languages, as downloadable PDFs, or sound files in a variety of formats, including immunization/vaccine information in 24 languages.
  
• Health and Medical Organizations
  Lists government agencies, professional associations, and health organizations. Most provide consumer health information.

Cancer

• American Cancer Society
  
• Cancer.gov (National Cancer Institute)
  NCI's home page provides both basic and advanced information, including fact sheets, PDQ data, cancer literature, support groups, and other consumer concerns.
  
• Kimmel Cancer Center at Jefferson
  Information about the Jefferson Cancer Network, clinical trials, the tumor bank, PhD programs, staff, and news stories.
  
• OncoLink (University of Pennsylvania)
  A multimedia resource designed to disseminate information, educate both professionals and consumers, and provide for collection of information relating to oncology. Containing FAQs, clinical trials information, conference notices and more; the site is naviagable via either a disease or specialty oriented menu.

Diabetes

• American Diabetes Association

Pediatrics

• KidsHealth (AIDI)
  Sponsored by our affiliate, the Alfred I. duPont Institute and the duPont Hospital for Children.

Rehabilitation

• National Clearinghouse of Rehabilitation Materials (OK State Univ.)
  Online documents, a catalog of videos and print documents for lay use, access to a research and referral service, and a search engine for Mental Health Net.